Leben mit GPP – Nutzen Sie Ihre Arztbesuche optimal
Kompetenzzentren (Centres of Excellence - CoE)
Über Kompetenzzentren (CoE)
Die Aufgabe von Kompetenzzentren (CoE) ist die Förderung evidenzbasierter Kompetenz bei lebenslanger GPP-Betreuung.
Ihre Vision besteht darin, sicherzustellen, dass jeder GPP-Patient:
Als Einzelperson respektiert wird, die eine seltene, schwere, lebensbedrohliche und lebenslange Krankheit hat
Eine prompte Diagnose erhält
Zugang zu evidenzbasierter, innovativer, lebenslanger, ganzheitlicher Betreuung hat
Die bestmögliche Lebensqualität erfährt
CoE-Kriterien
Die CoEs wurden in Zusammenarbeit mit führenden medizinischen Fachkräften für GPP und Patientenorganisationen ermittelt, um Zugang zu Betreuung für Menschen mit GPP zu bieten.
Diese Zentren wurden eingerichtet mit:
- dem höchsten Maß an Fachwissen.
- einem multidisziplinären Team.
- dem Ziel, die bestmöglichen Ergebnisse für Patienten zu erreichen.
Standorte
Es gibt zurzeit mehrere CoEs in ganz Europa. Menschen mit GPP haben Zugang zu den neuesten klinischen Studien und der bestmöglichen Betreuung rund um GPP.
Laden Sie die Broschüre herunter, um mehr über die CoEs zu erfahren, und darüber, wie Sie mit Ihrem Arzt über eine Überweisung an eines der Zentren sprechen können.
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