Living with GPP - Make the most out of your doctor's appointments
GPP community
Hear from people living with GPP
Talking about GPP can help people living with the condition better understand it.
Watch the videos below to learn about Brandon and Dale’s journeys and living with GPP.
Brandon’s story
Dale’s story
Psychological support
GPP can affect you emotionally and socially.25 You may change how you socialise and interact with loved ones or have feelings of anxiety and depression.25,26 Although living with GPP is not easy, it’s important to remember that there are ways to help manage your disease.15 GPP shouldn’t stop you from living your life if it’s managed well and you have support.
For more support on emotional wellbeing when living with GPP
You are not alone
Talking about GPP can help other people better understand it. But because it is such a
unique condition, it can be difficult to know where to begin.
Find out how to explain GPP to the people around you
Caregiver support
As a caregiver of someone living with GPP, you play a crucial role in offering them support as they navigate their disease journey.
In GPP, managing symptoms and flares is very important. Remind your loved one to be aware of any changes in their symptoms as these can indicate to their doctor how their disease is behaving. You can also help them with this and monitor for any worsening symptoms/flares and encourage them to seek medical support in time.
Check out some additional tips on how to support a friend or loved one with GPP
You are not alone
GPP Community
Online communities and patient organizations can help you connect with others living with GPP, and who may be experiencing the same feelings and thoughts as you. To find local patient organizations and communities, please speak to your doctor.
Specialist Support
When diagnosed with GPP it is crucial to get access to treatment and provide you with the support and disease management you need.2
Find out more about what a Centre of Excellence is and discuss with your doctor whether you need a referral.
Psychological Support
GPP is not just about the skin and other physical symptoms. The emotional, social and work-life impact of the disease is significant.2
If your GPP is affecting your emotional wellbeing, it’s extremely important to take care of your emotional wellbeing and find support that works for you.
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- Strober B, et al. Unmet medical needs in the treatment and management of generalized pustular psoriasis flares: evidence from a survey of Corrona registry dermatologists. Dermatol Ther (Heidelb). 2021;11(2):529-541. doi:10.1007/s13555-021-00493-0
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- Johnston A, et al. IL-1 and IL-36 are dominant cytokines in generalized pustular psoriasis. J Allergy Clin Immunol. 2017;140(1):109-120. doi: 10.1016/j.jaci.2016.08.056
- Robinson A, et al. Treatment of pustular psoriasis: From the Medical Board of the National Psoriasis Foundation. Journal of the American Academy of Dermatology. 2012;67(2):279-288. doi: 10.1016/j.jaad.2011.01.032
- Liang Y, et al. Psoriasis: a mixed autoimmune and autoinflammatory disease. Curr Opin Immunol. 2017;49:1-8. doi:10.1016/j.coi.2017.07.007
- Benjegerdes K, et al. Pustular psoriasis: pathophysiology and current treatment perspectives. Psoriasis: Targets and Therapy. 2016;6:131-144. doi: 10.2147/PTT.S98954
- Choon SE, et al. Clinical Course and Characteristics of Generalized Pustular Psoriasis. Am J Clin Dermatol. 2022;23(Suppl 1):21-29. doi: 10.1007/s40257-021-00654-z
- Bachelez H. Pustular Psoriasis: The Dawn of a New Era. Acta Derm Venereol. 2020;100(3):adv00034. doi: 10.2340/00015555-3388
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